Cystinosis Foundation Ireland
 Ireland  |  Research/Dev

Dedicated to providing services for those in affected by Cystinosis.

Cystinosis Foundation Ireland was founded in 2003 by these people and their families and friends to raise funds to promote research into the causes and improved treatments of Cystinosis and to hopefully one day find a cure. We have an Internet website with information on the disease and any updated information or news as it becomes available. We also education & raise awareness about the condition to the Medical Profession and the public. Almost nothing is known about the condition in the general public and indeed the Medical Profession. Many patients have experienced misdiagnosis, while early diagnosis is crucial so that cysteamine therapy (Cystagon™) is started as soon as possible.

Research

Raise awareness

Patient/parental support

Information

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