Tourette Syndrome Association
United Kingdom
| Research/Dev
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Tourettes Action is the UK’s leading support and research charity for people with Tourette Syndrome (TS) and their families. We want people with TS to receive the practical support and social acceptance they need to help them live their lives to the full. We deal with all forms of TS including the most challenging. TS is an inherited neurological condition. It affects one schoolchild in every hundred and more than 300,000 children and adults in the UK. TS is sometimes known as multiple tic disorder or tic spectrum disorder. In most cases TS is also linked to other behaviours, most often Obsessional Compulsive Disorder and Attention Deficit Disorder. Our work is organised into five programmes. Three focus on improving the quality of life of people with Tourette Syndrome at intersecting stages: children up to the age of 18; young adults aged 16 to 25; and adults beyond the age of 25. The fourth programme is specifically to improve experience of diagnosis, a particularly difficult time. The fifth programme aims to support research projects to improve quality of life at every stage.
