To help, support and advise families affected by A-T - particularly at the very difficult time around diagnosis.

Ataxia-Telangiectasia (“A-T”) is a rare, neurodegenerative and progressive condition which starts in early childhood causing severe disability and premature death. It affects many parts of the body robbing the child of his/her independence. A wheelchair is needed usually by the age of ten. The A-T Society is a national charity whose objective is to find a cure or treatment for A-T but it is also committed to supporting families affected by the condition as well as improving quality and length of life through our two specialist A-T clinics. We provide practical support, guidance and advocacy through a professional family support worker, support grants and access to a counsellor and specialist physiotherapist and occupational therapist and we provide information via a range of media to families affected by A-T, professionals, schools and the public.

Family Support
Counselling
Research
Information
Grants