Alpha-1 Foundation
United States
/ Florida
| Research/Dev
More information
The Alpha-1 Foundation is a not-for-profit Florida corporation founded in 1995 by John Walsh, Susan Stanley and Sandy Lindsey, three individuals diagnosed with Alpha-1 Antitrypsin Deficiency (AAT Deficiency or Alpha-1). The Foundation has realized continuous growth since its inception and has developed a solid infrastructure to promote research and the development of new therapies for improving the quality of life for those diagnosed with AAT Deficiency. It has fostered collaborations with investigators throughout the United States and Europe, working closely with the National Institutes of Health (NIH), the Food and Drug Administration (FDA), individuals affected with AAT Deficiency, and the pharmaceutical industry to expedite the development of improved therapies, including aerosol delivery for augmentation therapy.
